Tomorrow is International Rare Disease Day, a day of awareness and impact for rare diseases (those that affect fewer than 1 in 2,000 people). Trigeminal Neuralgia is one of those, and this year marks 15 years since I was diagnosed – hard to believe! So hang in there for a little education today.
These are all the branches in the trigeminal nerve so imagine an electric shock hitting one of them and how it can then travel to every single branch you see here. And when it’s not doing that, it’s stabbing, shooting, piercing, burning, or throbbing. Nonstop. 24/7. With no cure. That’s why TN is marked where it is on the McGill Pain Scale and how it gets the nickname “the suicide disease”.
When I’m out enjoying life, I’m in pain, like so many. But that’s not gonna keep me from living life to the fullest as best I can! I’m sharing this info to educate the masses for all those with TN. Please don’t take this as a “woe is me”. I’ve accepted the pain, and I’ve had years to adjust to my “normal”.
I just want to raise awareness.
I just want to raise awareness.#RareDiseaseDay #TrigeminalNeuralgia #EndTN #TNtoday #choosejoy #livefull
